Dealing with my father's Alzheimer's while he was also experiencing kidney failure was one of the most challenging periods of my life. The complications from kidney failure made his Alzheimer's symptoms more pronounced and some of his medications less effective. Although I don’t consider myself an expert on Alzheimer's, I learned to navigate the complexities of this disease. By allowing him to express himself and actively listening, I was able to maintain our communication and enjoy our time together.
I understand that everyone's journey with Alzheimer's is different, but I believe that listening to and supporting Alzheimer's patients without trying to correct or improve them can reduce stress for both the patient and the caregiver. My father shared many childhood stories with me, and after he passed, I recounted these tales to his best friend at the funeral. His friend confirmed the stories and added his own context, which was both enlightening and entertaining.
The following tips, suggested by the Alzheimer's Association, are intended to help you communicate more effectively with Alzheimer's patients. Remember, you can still learn a great deal from your loved one even at this stage in their life.
Recognize Changes in Communication
The most debilitating symptom of Alzheimer's disease is the gradual loss of language and understanding. Patients are often aware that something is wrong, even if they don't fully understand what is happening, leading to confusion, fear, and frustration for both the patient and their loved ones.
Adapt Your Communication Style
To improve communication, caregivers and family members need to recognize these changes and adapt their own communication styles accordingly. Here are some key tips:
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Be Patient and Supportive: Take the time to listen without interruptions or criticisms. Encourage and reassure your loved one, allowing them the time they need to form their thoughts. Resist the urge to correct misused words, as there may be meaning behind them that you can uncover with patience.
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Focus on Emotion: Pay attention to the emotional content behind the words. Tone of voice, hand gestures, and facial expressions can provide critical insights into what the person is trying to communicate.
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Avoid Criticism and Arguments: If you feel angry or frustrated, remember that criticism or arguing will only increase discomfort and agitation for the patient. Instead, practice patience and offer gentle suggestions for words they are trying to express.
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Choose the Right Environment: When necessary, move to a quieter place to communicate. Noise and crowds can be intimidating and increase frustration for Alzheimer's patients, while a calm environment can help them organize their thoughts.
Communicating in the Late Stages
For those in the late stages of Alzheimer's, communication requires additional strategies:
- Create Familiarity: Let the person know who you are to create a sense of comfort.
- Simplify Your Speech: Use simple words and sentences, and speak slowly in a lower tone.
- Be Prepared to Repeat: Be ready to repeat your questions or information and understand that the patient may repeat themselves as well.
- Use Nonverbal Communication: Signals or written words can be helpful tools for communication.
Above all, try to remain positive. Alzheimer's disease is incredibly challenging for both the patient and their caregivers. Patience, understanding, and compassion can make a significant difference in effective communication. Remember, the challenges are not your fault or theirs. Realize it is the disease that will stop their ability to learn new things, remember loved ones' names, or use the telephone. I have run into wonderful intelligent people who get so upset that despite their best efforts to remind them their loved one can no longer remember things like their children's names. Unfortunately, they miss out on what communication could take place.
By following these tips, you can improve your interactions with your loved one, making your time together more meaningful and less stressful. Here is more information on how we can help.
References:
Alzheimer's Association. Communication and Alzheimer's. Retrieved on November 8, 2010, from alz.org/care/dementia-communication-tips.asp.